Author/Creator: Jarecki, Jill - British Library Electronic Legal Deposit Catalogue-Journal Issues and Articles Search Results

Author/Creator Jarecki, Jill

1. An Evidence‐Based, Community‐Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular Trials. Issue 2 (20th December 2017)

Authors:: Moultrie, Rebecca R.; Lewis, Megan A.; Paquin, Ryan S.; Lucas, Ann; Jarecki, Jill; Peay, Holly L.
Journal:: Journal of genetic counseling
Issue:: Volume 27:Issue 2(2018)
Page Start:: 416
Record Type:: Journal Article
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2. Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adults. Issue 3 (19th June 2022)

Authors:: Mazzella, Allison; Cruz, Rosángel; Belter, Lisa; Curry, Mary; Dilek, Nuran; Zizzi, Christine; Heatwole, Chad; Jarecki, Jill
Journal:: Muscle & nerve
Issue:: Volume 66:Issue 3(2022)
Page Start:: 276
Record Type:: Journal Article
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3. Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders. (April 2018)

Authors:: Peay, Holly L; Biesecker, Barbara B; Wilfond, Benjamin S; Jarecki, Jill; Umstead, Kendall L; Escolar, Diana M; Tibben, Aad
Journal:: Clinical trials
Issue:: Volume 15:Number 2(2018)
Page Start:: 139
Record Type:: Journal Article
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4. Economic burden of spinal muscular atrophy: an analysis of claims data. Issue 1 (1st January 2020)

Authors:: Belter, Lisa; Cruz, Rosángel; Kulas, Sierra; McGinnis, Emily; Dabbous, Omar; Jarecki, Jill
Journal:: Journal of market access & health policy
Issue:: Volume 8:Issue 1(2020)
Page Start:
Record Type:: Journal Article
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5. Investigating attitudes toward prenatal diagnosis and fetal therapy for spinal muscular atrophy. (3rd September 2022)

Authors:: Schwab, Marisa E.; Shao, Shirley; Zhang, Li; Lianoglou, Billie; Belter, Lisa; Jarecki, Jill; Schroth, Mary; Sumner, Charlotte J.; MacKenzie, Tippi
Journal:: Prenatal diagnosis
Issue:: Volume 42:Number 11(2022)
Page Start:: 1409
Record Type:: Journal Article
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6. Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study. Issue 1 (December 2015)

Authors:: Qian, Ying; McGraw, Sarah; Henne, Jeff; Jarecki, Jill; Hobby, Kenneth; Yeh, Wei-Shi
Journal:: BMC neurology
Issue:: Volume 15:Issue 1(2015)
Page Start:: 1
Record Type:: Journal Article
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