1. Access to medicines for rare diseases: beating the drum for primary ciliary dyskinesia. Issue 3 (14th September 2020) Authors: Crowley, Suzanne; Azevedo, Inês; Boon, Mieke; Bush, Andrew; Eber, Ernst; Haarman, Eric; Karadag, Bulent; Kötz, Karsten; Leigh, Margaret; Moreno-Galdó, Antonio; Mussaffi, Huda; Nielsen, Kim G.; Omran, Heymut; Papon, Jean-François; Pohunek, Petr; Priftis, Kostas; Rindlisbacher, Bernhard; Santamaria... Journal: ERJ open research Issue: Volume 6:Issue 3(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. An international survey on nasal nitric oxide measurement practices for the diagnosis of primary ciliary dyskinesia. Issue 2 (4th April 2022) Authors: Beydon, Nicole; Ferkol, Thomas; Harris, Amanda Lea; Colas, Murielle; Davis, Stephanie D.; Haarman, Eric; Hogg, Claire; Kilbride, Emma; Kouis, Panayotis; Kuehni, Claudia E.; Latzin, Philipp; Marangu, Diana; Marthin, June; Nielsen, Kim G.; Robinson, Phil; Rumman, Nisreen; Rutter, Matthew; Walker, W... Journal: ERJ open research Issue: Volume 8:Issue 2(2022) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Cyanosis when head turned to left in an infant with primary ciliary dyskinesia1. Issue 1 (19th March 2012) Authors: Vermeulen, Bas; Haarman, Eric; Rammeloo, Lukas; Hruda, Jaroslav Journal: Pediatric pulmonology Issue: Volume 48:Issue 1(2013:Jan.) Page Start: 88 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Diagnostic Methods in Primary Ciliary Dyskinesia. (March 2016) Authors: Lucas, Jane S.; Paff, Tamara; Goggin, Patricia; Haarman, Eric Journal: Paediatric respiratory reviews Issue: Volume 18(2016) Page Start: 8 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. International BEAT-PCD consensus statement for infection prevention and control for primary ciliary dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient representatives. Issue 3 (2nd August 2021) Authors: Marthin, June K.; Lucas, Jane S.; Boon, Mieke; Casaulta, Carmen; Crowley, Suzanne; Destouches, Damien M.S.; Eber, Ernst; Escribano, Amparo; Haarman, Eric; Hogg, Claire; Maitre, Bernard; Marsh, Gemma; Martinu, Vendula; Moreno-Galdó, Antonio; Mussaffi, Huda; Omran, Heymut; Pohunek, Petr; Rindlisbac... Journal: ERJ open research Issue: Volume 7:Issue 3(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Nasal nitric oxide measurement in children for the diagnosis of primary ciliary dyskinesia: European Respiratory Society technical standard. Issue 4 (20th April 2023) Authors: Beydon, Nicole; Kouis, Panayiotis; Marthin, June K.; Latzin, Philipp; Colas, Murielle; Davis, Stephanie D.; Haarman, Eric; Harris, Amanda Lea; Hogg, Claire; Kilbride, Emma; Kuehni, Claudia E.; Marangu, Diana; Nielsen, Kim G.; Pendergrast, Catherine; Robinson, Phil; Rumman, Nisreen; Rutter, Matthe... Journal: European respiratory journal Issue: Volume 61:Issue 4(2023) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Prediction of asthma in early preschool wheezing by electronic nose analysis. Issue 1 (3rd September 2021) Authors: Rutjes, Niels; Van den Bongaardt, Ivo; Hashimoto, Simone; Sterk, Peter; Van Aalderen, Wim; Terheggen‐Lagro, Suzanne; Brinkman, Paul; Maitland ‐ van der Zee, Anke‐Hilse; Van der Schee, Marc; Haarman, Eric Editors: Kalayci, Ömer Journal: Pediatric allergy and immunology Issue: Volume 33:Issue 1(2022) Page Start: n/a Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials. Issue 1 (1st February 2019) Authors: Lucas, Jane S.; Gahleitner, Florian; Amorim, Adelina; Boon, Mieke; Brown, Philippa; Constant, Carolina; Cook, Simon; Crowley, Suzanne; Destouches, Damien M.S.; Eber, Ernst; Mussaffi, Huda; Haarman, Eric; Harris, Amanda; Koerner-Rettberg, Cordula; Kuehni, Claudia E.; Latzin, Philipp; Loebinger, Mi... Journal: ERJ open research Issue: Volume 5:Issue 1(2019) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Study protocol, rationale and recruitment in a European multi-centre randomized controlled trial to determine the efficacy and safety of azithromycin maintenance therapy for 6 months in primary ciliary dyskinesia. Issue 1 (December 2016) Authors: Kobbernagel, Helene; Buchvald, Frederik; Haarman, Eric; Casaulta, Carmen; Collins, Samuel; Hogg, Claire; Kuehni, Claudia; Lucas, Jane; Omran, Heymut; Quittner, Alexandra; Werner, Claudius; Nielsen, Kim Journal: BMC pulmonary medicine Issue: Volume 16:Issue 1(2016) Page Start: 1 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
10. The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results. Issue 1 (5th January 2017) Authors: Goutaki, Myrofora; Maurer, Elisabeth; Halbeisen, Florian S.; Amirav, Israel; Barbato, Angelo; Behan, Laura; Boon, Mieke; Casaulta, Carmen; Clement, Annick; Crowley, Suzanne; Haarman, Eric; Hogg, Claire; Karadag, Bulent; Koerner-Rettberg, Cordula; Leigh, Margaret W.; Loebinger, Michael R.; Mazurek... Journal: European respiratory journal Issue: Volume 49:Issue 1(2017) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗