1. FRI0607 IDENTIFICATION OF UNMET NEEDS RELATED TO RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES (RCTDS) ACROSS EU: THE EXPERIENCE OF THE ERN RECONNET. (June 2019) Authors: Marinello, Diana; Ticciati, Simone; Talarico, Rosaria; Alexander, Tobias; Arnaud, Laurent; Cavagna, Lorenzo; Beretta, Lorenzo; Chaigne, Benjamin; Cornet, Alain; Costedoat-Chalumeau, Nathalie; Fischer-Betz, Rebecca; Frank, Charissa Hermine; Galetti, Ilaria; Grunert, Jürgen; Guimaraes, Vera; Iaccar... Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 999 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. PARE0012 INVOLVEMENT OF PATIENTS IN ERN RECONNET: A SUCCESSFUL INITIATIVE RAISING PATIENTS' LEADERSHIP AT EUROPEAN LEVEL. (June 2019) Authors: Cornet, Alain; Frank, Charissa Hermine; Galetti, Ilaria; Grunert, Jörgen; Guimaraes, Vera; Matthews, Lisa; Otter, Sander; Vieira, Ana Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 2182 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. SAT0682 PATIENT EDUCATION IN THE EUROPEAN REFERENCE NETWORK ON RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES (ERN RECONNET): UNMET NEEDS FROM THE HEALTH CAREPROVIDERS SIDE AND FROM THE PATIENTS' SIDE. (June 2019) Authors: Farhat, Méryem-Maud; Cornet, Alain; Frank, Charissa; Galetti, Ilaria; Grunert, Juergen; Guimaraes, Vera; Matthews, Lisa; Vieira, Ana; Hachulla, Eric Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 1443 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗