1. Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations. Issue 12 (16th December 2020) Authors: Roennow, Annelise; Sauvé, Maureen; Welling, Joep; Riggs, Robert J; Kennedy, Ann Tyrrell; Galetti, Ilaria; Brown, Edith; Leite, Catarina; Gonzalez, Alex; Portales Guiraud, Alexandra Paula; Houÿez, François; Camp, Rob; Gilbert, Annie; Gahlemann, Martina; Moros, Lizette; Luna Flores, Jose Luis; Schm... Journal: BMJ open Issue: Volume 10:Issue 12(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗