1. Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations. Issue 12 (16th December 2020) Authors: Roennow, Annelise; Sauvé, Maureen; Welling, Joep; Riggs, Robert J; Kennedy, Ann Tyrrell; Galetti, Ilaria; Brown, Edith; Leite, Catarina; Gonzalez, Alex; Portales Guiraud, Alexandra Paula; Houÿez, François; Camp, Rob; Gilbert, Annie; Gahlemann, Martina; Moros, Lizette; Luna Flores, Jose Luis; Schm... Journal: BMJ open Issue: Volume 10:Issue 12(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. OP27 Engaging Patients: The EuroCAB Programme. (2019) Authors: Houyez, François; Camp, Rob Journal: International journal of technology assessment in health care Issue: Volume 35(2019)Supplement 1 Page Start: 6 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Partner-based adherence intervention for second-line antiretroviral therapy (ACTG A5234): a multinational randomised trial. Issue 1 (January 2015) Authors: Gross, Robert; Zheng, Lu; Rosa, Alberto La; Sun, Xin; Rosenkranz, Susan L; Cardoso, Sandra Wagner; Ssali, Francis; Camp, Rob; Godfrey, Catherine; Cohn, Susan E; Robbins, Gregory K; Chisada, Anthony; Wallis, Carole L; Reynolds, Nancy R; Lu, Darlene; Safren, Steven A; Hosey, Lara; Severe, Patrice; ... Journal: Lancet Issue: Volume 2:Issue 1(2015) Page Start: e12 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Policy recommendations for rare disease centres of expertise. (October 2015) Authors: Syed, Ahmed M.; Camp, Rob; Mischorr-Boch, Christina; Houÿez, Francois; Aro, Arja R. Journal: Evaluation and program planning Issue: Volume 52(2015:Oct.) Page Start: 78 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗