1. Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future collaborations. Issue 12 (16th December 2020) Authors: Roennow, Annelise; Sauvé, Maureen; Welling, Joep; Riggs, Robert J; Kennedy, Ann Tyrrell; Galetti, Ilaria; Brown, Edith; Leite, Catarina; Gonzalez, Alex; Portales Guiraud, Alexandra Paula; Houÿez, François; Camp, Rob; Gilbert, Annie; Gahlemann, Martina; Moros, Lizette; Luna Flores, Jose Luis; Schm... Journal: BMJ open Issue: Volume 10:Issue 12(2020) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Disability, fatigue, pain and their associates in early diffuse cutaneous systemic sclerosis: the European Scleroderma Observational Study. (30th November 2017) Authors: Peytrignet, Sébastien; Denton, Christopher P; Lunt, Mark; Hesselstrand, Roger; Mouthon, Luc; Silman, Alan; Pan, Xiaoyan; Brown, Edith; Czirják, László; Distler, Jörg H W; Distler, Oliver; Fligelstone, Kim; Gregory, William J; Ochiel, Rachel; Vonk, Madelon; Ancuţa, Codrina; Ong, Voon H; Farge, Dom... Journal: Rheumatology Issue: Volume 57:Number 2(2018) Page Start: 370 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Patterns and predictors of skin score change in early diffuse systemic sclerosis from the European Scleroderma Observational Study. Issue 4 (6th January 2018) Authors: Herrick, Ariane L; Peytrignet, Sebastien; Lunt, Mark; Pan, Xiaoyan; Hesselstrand, Roger; Mouthon, Luc; Silman, Alan J; Dinsdale, Graham; Brown, Edith; Czirják, László; Distler, Jörg H W; Distler, Oliver; Fligelstone, Kim; Gregory, William J; Ochiel, Rachel; Vonk, Madelon C; Ancuţa, Codrina; Ong, ... Journal: Annals of the rheumatic diseases Issue: Volume 77:Issue 4(2018) Page Start: 563 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Treatment outcome in early diffuse cutaneous systemic sclerosis: the European Scleroderma Observational Study (ESOS). Issue 7 (10th February 2017) Authors: Herrick, Ariane L; Pan, Xiaoyan; Peytrignet, Sébastien; Lunt, Mark; Hesselstrand, Roger; Mouthon, Luc; Silman, Alan; Brown, Edith; Czirják, László; Distler, Jörg H W; Distler, Oliver; Fligelstone, Kim; Gregory, William J; Ochiel, Rachel; Vonk, Madelon; Ancuţa, Codrina; Ong, Voon H; Farge, Dominiq... Journal: Annals of the rheumatic diseases Issue: Volume 76:Issue 7(2017) Page Start: 1207 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗